Hello All,
Sorry I haven't been as active on the chat, I hope others have been going out and using it. I've been real busy with this move, and not having seizures has given me new energy to do things. Like: laundry, grocery shopping, vacuuming, doing dishes, washing floors, and yes having fun. Actually was able to hike up a local river over the weekend.
I did push it a bit far in the 100 degree heat, and had some difficulties staying hydrated on the medicine I take. But we took it slow and it was a beautiful day.
There can be life after seizures. Or even while you have a seizure disorder if you are careful and plan ahead. Of course you need your doctor's input on what you can and cannot do (diving is out for most of us) but snorkling might be in with a buddy and MD permission.
One really big key for me is not getting overtired. And that is real hard, because as soon as I start feeling good, I want to do it all. And if I do, I end up in the hospital. I know this. I've done it over and over again. I'm 48 now. I don't want to do this anymore. So I recruit friends and relatives to help me slow down and/or give feedback if they see me doing this pattern yet again. I've been a type A - I take life in big gulps. Sipping is much healthier.
With the EMDR and somatic body work the PNES is waning. Life looks possible again. What a miracle.
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