Friday, June 15, 2007

PNES Emergency Department Protocol in the Making

Well, I gave it a whirl, and we'll see how it goes. No comments on it so far. You can see this at: http://www.webspawner.com/users/charmagick/workingemergenc.html

In my experience as both a nurse and a patient, many medical health providers have very little training and information on seizures. There are around 120 types of epileptic seizures, many of which never present in an emergency department because total loss of consciousness is not necessarily acheived.
Psychogenic seizures are still in their infancy as far as understanding, and just getting folks to use 'psychogenic' instead of 'pseudo' and 'hysteria' is a big undertaking.
I know I've been pushing Peter Levine's book 'Waking the Tiger', but I have no financial interest in doing so. It simply is a great explanation of how the body and unconscious store traumatic events and 'speak' them later.
I have experienced more retraumatization in the hands of medical providers who have little to no understanding of PNES (psychogenic nonepileptic seizures). I have been severely bruised, yelled at, neglected, hit, and left in my own urine as 'punishment' as she put it.
It's time to stop. Seizures are not shameful, whatever the cause. Traumatizing seizure patients just adds to the problem. If you don't have space in your heart for compassion, simply provide a low stimulation space, possibly a low dose of anxiolytic and some time to come out of it. And remember that epileptologists state that seizures can only be truly diagnosed while on a VEEG. The 'bedside tricks' can be misleading. Be careful you are not missing something.

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