This housecall is for all neurologists, epileptologists, psychologists, and psychiatrists. I thank you for your patience and sense of humor with my posts. They are meant sincerely and without sarcasm. This has come from years of frustration of being referred back and forth from neurology to psychiatry to no avail and/or being put in the middle of both disciplines with conflicting diagnoses. Though I am now through most of this, many others are still experiencing this maddening scenario. Your input is most welcome.
Back and forth between neurology and psychiatry with conflicting diagnoses for years I go... Psychiatry says the VEEG is NOT the gold standard for epilepsy, everything is fallible. Neurology says it is not. Now where do I go?
Psychiatry won't talk with neurology, neurology doesn't have the time to talk it over, says it won't help. What is the patient supposed to do? They are having episodes almost every day. Insurance only pays for allopathic medicine. Who is supposed to advocate? The primary care MD only knows allopathics.
Being a nurse case manager with knowledge of 'the system' still took me twenty two years to find treatment that worked.
It is no small wonder that PNES patients yearn to have a 'normal' physical illness that can be treated with an insurance payable medical treatment that doesn't begin with 'psycho'.
Thank God for Peter Levine and Dr. Selim Benbadis. And many others I am yet to learn about. Many are healing because of their pioneering spirits and compassionate hearts in this misunderstood field. Their articles are available on this website.
Fortunately, EMDR and Somatic Experiencing can be taught to insurance payable providers making treatment more accessible and palatable to PNES patients. Hypnosis, biofeedback and cognitive behavioral therapy (CBT) are also being reported as helpful.
EMDR and SE just happen to be working for me.
It will be a good day when there is a page full of experienced PNES providers to be given out by the ED to the PNES patients...
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