Chat Room Schedule Change for Tuesday

Chat Room Schedule Change:

TUESDAY IS CANCELLED
My apologies for any inconvencies this may have caused. Please feel free to go on without me!
Blessings, Charlene

"I am only one. But still, I am one. I cannot do everything, but still I can do something. And because I cannot do everything, I will not refuse to do the something that I can do."— Edward Everett Hale

Week of 7-30 Chat Room Schedule

Hello,
Please join us!
Pacific Standard Time (Central Time, add two hours)
Monday: 5PM-7PM
Friday 11:30AM-1:30PM
Saturday 11:30AM-1:30PM
Remember to make a noise upon entering. (Click on the button with the two notes.)

You can also set up other times to chat if you wish through email.
Blessings,
Charlene

Next Week's Chat Schedule

Hi,
Here are some times for the UK,
Tuesday: 11:30-1:30PM PST
Thursday: 11:30-1:30PM PST
Saturday: 11:30-1:30PM PST

Remember to make a noise when you enter.
If anyone else wants different time frames, please let me know. This is 7:30 to 9:30PM for the UK, 1:30-3:30 Central US time. No one attended the 5-7PM slot this week.
Blessings, Charlene

Saturday July 21st Chat Room Time Change

Hello All,
Tomorrow, I will not be available to host 11:30 to 1:30 PST. Please feel free to go on without me! That's 1:30 to 3:30PM Central Time.

I will be available 12:30 to 2:30 PST which I know is a bit late for the UK and my apologies -

REMEMBER to make a noise when you enter, I'll be listening!
Charlene

Housecall for Neurologists and Psychiatrists - Bridging the Gap

This housecall is for all neurologists, epileptologists, psychologists, and psychiatrists. I thank you for your patience and sense of humor with my posts. They are meant sincerely and without sarcasm. This has come from years of frustration of being referred back and forth from neurology to psychiatry to no avail and/or being put in the middle of both disciplines with conflicting diagnoses. Though I am now through most of this, many others are still experiencing this maddening scenario. Your input is most welcome.

Back and forth between neurology and psychiatry with conflicting diagnoses for years I go... Psychiatry says the VEEG is NOT the gold standard for epilepsy, everything is fallible. Neurology says it is not. Now where do I go?

Psychiatry won't talk with neurology, neurology doesn't have the time to talk it over, says it won't help. What is the patient supposed to do? They are having episodes almost every day. Insurance only pays for allopathic medicine. Who is supposed to advocate? The primary care MD only knows allopathics.

Being a nurse case manager with knowledge of 'the system' still took me twenty two years to find treatment that worked.

It is no small wonder that PNES patients yearn to have a 'normal' physical illness that can be treated with an insurance payable medical treatment that doesn't begin with 'psycho'.

Thank God for Peter Levine and Dr. Selim Benbadis. And many others I am yet to learn about. Many are healing because of their pioneering spirits and compassionate hearts in this misunderstood field. Their articles are available on this website.

Fortunately, EMDR and Somatic Experiencing can be taught to insurance payable providers making treatment more accessible and palatable to PNES patients. Hypnosis, biofeedback and cognitive behavioral therapy (CBT) are also being reported as helpful.

EMDR and SE just happen to be working for me.

It will be a good day when there is a page full of experienced PNES providers to be given out by the ED to the PNES patients...

Doctors Who Treat Psychosomatic Disorders

There is a website that you can access: http://www.holisticmedicine.com/ that has a search engine that includes psychosomatics.

I can't vouch for them, other than they are members of this association. I easily found two in California, and would need to do further research to know what they actually 'do' for methods.

Please let me know if you are a practitioner or a patient, and if you have any input on this website, or resources that treat this area.

Just because the word 'psycho' is at the front of the word doesn't mean...well, you know.

Chat Room Schedule Change

Please note a chat room schedule change to accomodate those in the UK:
Saturday: July 14th; 11:30-1:30PM
Monday: July 16th; 11:30-1:30PM
Friday: July 20th; 11:30-1:30PM
Wednesday: July 18th; 5-7PM
All Pacific Standard Time
Next week, I'll post a regular ongoing schedule,
REMEMBER, make a noise when you enter!

Chat Room Tentative Schedule

Hello,
I'm back and ready to host. Let's try Monday, Wednesday and Friday AM: Pacific Standard Time: 9AM to 11AM (That's 1AM to 3AM GMT);
and 7PM to 9PM PST Tuesday, Thursday and Saturday (1PM to 3PM GMT).

REMEMBER: Make a NOISE when you enter...I'll be listening.

Let me know how that works for you, we can change out the times if you can't make it.
I'll post if I can't make it.

Chat Room Update

I'll be back to host later this week if all goes well. Feel free to give input as to what hours work for you and I'll accomodate as best I can for everyone. If you are interested in hosting please let me know that too.

Treatment for Psychogenic Seizures, Copyright

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Chat Room Today

Sunday, July 8th, the Chat Room will be hosted from 5AM to 5PM PST. That is 3PM to 3AM for all you UK'ers! Please make a noise when you enter and give me 5-10 seconds to enter, thanks!
Looking forward to seeing you, Charlene.

Chat Room Scheduling

As of the moment, you may come into the chat room at any time. Monitoring will be scheduled, and times will be posted here and at www.nonepilepticseizures.com 's message board.

As soon as I finish my move next Tuesday, and have more input from others, a regular schedule will begin.

All input is welcome. Looking forward to seeing you.

Today, Saturday, the room will be monitored from 10AM -2PM PST. Longer if there are chatters.

Many Names, Many Kinds of Seizures

In epilepsy, there are a reported 140 types of seizures. To date, I have not found a number for PNES (psychogenic nonepileptic seizures). There are descriptions of dissociative seizures or conversion disorder that mimic epilepsy very closely to other accounts that do not.
Older terms such as hysteria and hysterical epilepsy are not used as much any longer as they are understandably not well received and not necessarily accurate.
Labels can be crippling.
Patients will label themselves as crazy as soon as epilepsy is ruled out. If the diagnosis of PNES is not delivered with compassion, education and understanding, much damage can be done. The second component that must be always included is a comprehensive treatment plan with follow through.
Please don't let these people slip through the cracks. Take the time and interest, or find someone to do so for you. If you have diagnosed PNES, find someone in the community your patient lives in that treats somatic disorders, PTSD, dissociative disorders, and familiarize yourself with Peter Levine's work at traumahealing.com. Dr. Benbadis, an epileptologist in Tampa, FL is having success with EMDR (see "The Truth of Psychogenic Seizures, and EMDR Explained).
I'm doing well with EMDR and with a somatic treator. Other folks I'm speaking with are trying biofeedback, self hypnosis and cognitive treatment with varying success.
Thank you for dropping your judgment around these patients. They are suffering very deeply and help is scarce, hostility abundant. They have been grouped in with malingerers and fakers. Please help separate them out and give them the help they need and deserve. Let's all do no harm.